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Brochures & Articles

Listening to the littlest
by: Ruth Reardon

If I have special needs, Remember........they are special, but I am not.
I am not a "special child", but a child with special needs.
Be sensitive, and make allowance.
But whenever it is possible,
treat me like all the rest.
Don't let those special needs be all you see of me.
Give me the dignity of living with the same rules as others.
Not set apart, or different, except where I must be.
Keep me and others from using handicaps!

Brochures

The following are brochures that were or are offered by many different sources to help EB families. Credit is given.

For New Parents

Basic 101 Care

Physical Therapy

EB and the Eyes

EB and Dental Health

Nutrition for Babies w/Dystrophic

Diet for EB Patients

Guidelines on Development

A Guide for Schools

Articles

The following are articles that were submitted by EB families in an effort to help other patients and families in a variety of ways.

EB and Dental Care by Melanie (Logan) England

Bandaging and severe RDEB by Silvia Corradin

Hand Surgeries by Grandma Shirley

Skin Cancer in RDEB

Flying with EB Kids

Helpful Words

Getting Ready For School by Melanie (Logan) England
Dealing with Insurance Companiesby Melanie (Logan) England
All About Anemia
Medical Care Info

Articles or Personal Stories

ABC Wrapping

A Day In The Life by Silvia Corradin

A Day In Jonathan's Life by Brenda Gionfriddo

About Eddie Paul by Helen Kling

Nicky's Wish by Silvia Corradin

Nicky goes to Camp Wonder by Silvia Corradin

Leo by Debbie Kay Hatley
My Story by Jennifer Kirk Deprizio
Making Goals and Dreams come true by Bruce Gunn
Have a Heart for EB by Lorraine Cameron

Nana Grams by Cindy Guthrie

Remembering Ryan by Jen O'Neil

Life with Andy by Mary Jo Burgy

Jonathan's smile by Brenda Gionfriddo

EB Conference 99 Souvenir by Silvia

The Biggest Influence Of My Life by Heather Wagner

The Devastation that is EB by Denise Ippolito Dandurand

The History of EB info World: A mother's journey by Silvia

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Living with
Epidermolysis Bullosa
by Silvia C. & Brenda G.

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