As a mother of a child with EB myself, I know I could have used the advice of a mom who had 'been there' when my son was born. Not only to get advice, but on emergency situations as well.

Below is a list of moms and patients who kindly offer their help and support that come to this website who need help ASAP or that simply need a sympathetic shoulder to cry on. Next to their description, is their Chat nickname or #

Legend:

	IF the parent is willing to receive emails, the description will be linked to their email address.
	AOL IM Nickname
	ICQ
	Yahoo IM nickname
	MSN Messenger nickname
RDEB	Recessive Dystrophic Epidermolysis Bullosa
DDEB	Dominant Dystrophic Epidermolysis Bullosa
EBS	Epidermolysis Bullosa Simplex
JEB	Junctional Epidermolysis Bullosa

Description
Mom of elementary school age child and infant with JEB-non herlitz	JEB2Boys
Mother of 2 RDEB children that are angels in heaven	ebmrf
Mom of small toddler with RDEB	mommie2jon
Grandmother of toddler with RDEB, also mother of grown daughter with EBS. Husband also has EBS	ebnanny nanny2andrew
Mother of young toddler with EBS and also of toddler with Spina Bofida	nellieyates
Mother of teenager with mild JEB-Herlitz	dartagnan693
Mother of small toddler with EBS-Dowling Meara	Specialmum99			Specialmum99
Grandmother of elementary school age child and infant with JEB-non herlitz	Rosethings
Mother of toddler with RDEB	mom2tasha  rdeb
Mother of elementary school-age RDEB child	YTa7500349
Mother of small toddler with RDEB		63675835		tblattel
Mother of teenager with RDEB	kellysmomdenise
Mother of child with ???		14259318 Dreamweaver
Mother of small toddler with DEB		53892276 Sputnik
Mother of toddler with RDEB	HuntDns
Mother of toddler and a new baby with RDEB	two ebkids
Grandmother who is raising her RDEB grandaughter				Ludie818
Mother of kindergartener with RDEB	vallesifan
EBS Patient and mother of toddler with EBS	mscmwade
Adult female with EBS-DM	jrnliste74		gespurr@hotmail.com
Adult mother with DDEB with toddler with DDEB	mstnksl			mtnksl
Young Adult (female) with RDEB	UnicornGirl1983		Cristina7483@hotmail.com	Butterfly_Unicorn_girl1983
Adult Female with severe EBS-DM	kimothee		kimothee
Mother of toddler with EBS-DM	pamwoo10		pamwoo10
EBS Patient and mother of toddler with EBS	dnini1		dnini1
Father			needy
EB Georgia Group	EBGAgroup
Mother of teenage RDEB son			Jane
Mother of toddler with eb simplex				teribethdjt
EBS patient and mother of preschool girl with EBS
Father of baby girl RDEB	qaman109
FEMALE w/RDEB AND BROTHER RDEB, BOTH ADULTS NOW
Mother of teen w/ RDEB		107879463	van_dana@hotmail.com
Mother with and child with EB
Teenage female with moderate (eb) unknown type			chelsey_macneil@hotmail.com
Mother of young son with DDEB	countryredbsqs			sandybeachks
Father and and daughter with ebs			noseheavy
Mother of baby girl with EBS DM	wisedi
Young mom of two babies that passed from jheb and a new healthy baby	Pe5A
Adult patient with Junctional EB	jjointer
Mother with young school aged child with RDEB	princessfem76
Mother of teen w/RDEB			karma
Teen boy with  RDEB			Rebirth_4_Life@hotmail.com	Xyandar
Mother of RDEB patient
Female and two brothers RDEB adults
Young Adult (female) with RDEB	WinglessGirl17		trdebn@hotmail.com	pixieness1o1@yahoo.com
EBS Mother 2 sons who are EBs too				gem2527
Eb Simplex Patient. Young Adult...	Mrkrinkle222		gilligan970@hotmail.com	mrkrinkle222
Step-mom of a 22 yr. son with RDEB
EBS	HCCybervest
mum with son witheb simplex
Young adult (female) with RDEB
Adult female with EB, also a mother of 2	ILstephen
Mother of Toddler with RDEB			mbseijas@hotmail.com	mbseijas2004
ddeb young adult woman
girlfiend of man with EBS
Father of daughter with EB-simplex				ColtonWayne33
Mother of newborn baby EMS DM new mutation
shelia age 44 DDEB also my son 26 and grandson 2 months				day_dreamer_40
Young female adult and patient of EB Simplex				Katie Bridwell
Mother of young son with RDEB	lianejo
Mother of toddler girl with EBS	CarrieHautz76		CBSpockets@yahoo.com	CBSpockets

If you would like to add or take out your name from this list, please contact me or fill out this form below. Thank you!!