EB Info
World
The Children with EB are called "Butterfly Children" because in spite of the extreme fragility of their skin (like a butterfly wing), that blisters at the slightest touch, they take on life and light it up with their bravery.
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 utterfly
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- Recessive Dystrophic -
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We hope the pictures of these special children will touch your heart.
Weston
Weston Zucha was born in August 1994. He has the Recessive Dystrophic form of EB and lives in Texas, along with his mom and dad: Dana & Chris.
Click here
to go to Weston's Home Page!
Dennis
Dennis Parlevliet was born in June 1993. He has the Recessive Dystrophic form of EB called Hallopeau-Siemens (webbing type). He lives in a small town called Noordwijkerhout in the Netherlands, Europe, along with mom and dad: Liesbeth and Johan and sister Suzanne.
Dennis was the EBkid of the month for October 1999.
Garrett
Garrett Spaulding was born in January 1997. He has the Recessive Dystrophic form of EB, the Hallopeau Siemens subtype, and lives in Northern California with mom, dad and 4 older siblings.
Joey
Joey Entz was born on August 25, 1996. He has the Recessive Dystrophic EB, possibly the "Inversa" subtype. He lives in Chandler, Arizona, with his mom and Dad (Karen and Gene).
Andrew
Andrew Jordan Willett was born March 27, 1998. He has the Recessive Dystrophic form of EB, and lives in Churchville, Virginia. He lives with his mommy, Becky Willett and his brother Brian (EB free). His grandpa Roy and his aunt Sarah have EB, just on their hands and feet. Roy's father had the same kind.
Andrew was the Featured EBkid for January-March 2001.
Email Andrew's mommy! OR his Nanny Debby! OR his aunt Sarah!
Miranda
Miranda Blattel was born December 14, 1998. She has the Recessive Dystrophic form of EB, and lives in Doolittle, Missouri, with her older sister Makayla (with her in the photo) and mom and Dad: Tammy and Matt.
Email Miranda's
mom and dad OR Her aunt Renee`
Click here
to go to Miranda's Home Page!
Lucy
Lucy Margaret Elizabeth Lott was born November 18 , 1998. She has the Recessive Dystrophic form of EB, and lives in Comfort, Texas with big sister India Jane, big brother George, and with mommy Elizabeth.
Antonio
Antonio William Torres
was born November 26, 2000. He has the Recessive Dystrophic form of EB.
He has a great personality and is always smiling not to mention his great
big brown eyes that light up any room. He has a sister Tori 7/9/99 who
is eb free and is the son of Liane Ottley-Torres and Antonio Torres, they
live in Providence RI.
If your child has EB and you would like his or her photo on this page, please email Silvia...THANK YOU!!
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Last Updated: July 02, 2006
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