EB Info World
The Children with EB are called "Butterfly Children" because in spite of the extreme fragility of their skin (like a butterfly wing), that blisters at the slightest touch, they take on life and light it up with their bravery.
- Recessive Dystrophic -
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Visit and Join the EB Awareness & News Group! We hope the pictures of these special children will touch your heart. Jonathan Jonathan was born May 11, 1999. He has the Recessive Dystrophic form of EB, and lives in New Britain, Connecticut with big sister Ashley and mom & dad: Dominic and Brenda. Jonathan was the EBkid of the month for May 2000. Email Jonathan's mommy! Click here to go to his Homepage! Ian Ian Evan Swarr was born May 28, 1998. He has the Recessive Dystrophic form of EB, and lives in Lancaster County, Pennsylvania, with mommy Delicia and his step-dad Troy and his little brother Noah. Noah was born November 20, 2004 and Delicia is due with a new baby on the same day (2006). Grandma Brenda and Grandpa Carl live next door, they help with the care of the kids. Ian was the EBkid of the month for March/April 2000. Email Ian's mommy! Ettore Ettore Buonocunto was born June 2, 1992. He has the Recessive Dystrophic form of EB, and lives in Grottaglie, a little village near Taranto, Italy, with his mom & dad: Giuseppina and Danilo. Giuseppina is a pediatrician and is the organizer of the Italian EB Conferences. Email Ettore's mommy! Click here to go to Ettore's mommy page about EB Rachel & Matthew Rachel Nicole Barber was born on September 22, 1998. Her little brother Matthew was born August 28, 2000. They both have the Recessive Dystrophic form of EB and live in Delaware, Ohio, with their mom and dad, Molly and Greg. Rachel was the EBkid of the month for June/July 2000. Email Rachel and Matthew's mommy! Hunter Hunter Dandurand was born June 29, 1997. He has the Recessive Dystrophic form of EB and lives in Crystal River, Florida with his mom Denise and dad. Email Hunter's mommy! Randy Randall (Randy) Lowell Mayhew was born on May 22,1997 with Recessive Dystrophic EB, the Hallopeau Siemens subtype. He has one older brother D.J., and two younger sisters Donna and Dalayna, all are eb free. Randy's family lives in Columbus, Ohio. Email Randy's mommy! Click Here to visit their Home Page! Samuel Samuel Arcides Diaz was born on September 16th, 2005 and has the Recessive Dystrophic form of EB. He is Allison & Julio Diaz' first child and they live in Spokane, Washington. Email Samuel's mommy! If your child has EB and you would like his or her photo on this page, please email Silvia...THANK YOU!! Playing: Because you loved me by Celine Dion There is a destiny that makes us brothers, no one goes his way alone: all that we send to the lives of others comes back into our own. - Edwin Markham Website maintained and graphics by Princess Silvia | Sleeping Angel Web Design
We hope the pictures of these special children will touch your heart.
Jonathan
Jonathan was born May 11, 1999. He has the Recessive Dystrophic form of EB, and lives in New Britain, Connecticut with big sister Ashley and mom & dad: Dominic and Brenda.
Jonathan was the EBkid of the month for May 2000.
Email Jonathan's mommy!
Click here to go to his Homepage!
Ian
Ian Evan Swarr was born May 28, 1998. He has the Recessive Dystrophic form of EB, and lives in Lancaster County, Pennsylvania, with mommy Delicia and his step-dad Troy and his little brother Noah. Noah was born November 20, 2004 and Delicia is due with a new baby on the same day (2006). Grandma Brenda and Grandpa Carl live next door, they help with the care of the kids.
Ian was the EBkid of the month for March/April 2000.
Email Ian's mommy!
Ettore
Ettore Buonocunto was born June 2, 1992. He has the Recessive Dystrophic form of EB, and lives in Grottaglie, a little village near Taranto, Italy, with his mom & dad: Giuseppina and Danilo. Giuseppina is a pediatrician and is the organizer of the Italian EB Conferences.
Email Ettore's mommy!
Click here to go to Ettore's mommy page about EB
Rachel & Matthew
Rachel Nicole Barber was born on September 22, 1998. Her little brother Matthew was born August 28, 2000. They both have the Recessive Dystrophic form of EB and live in Delaware, Ohio, with their mom and dad, Molly and Greg.
Rachel was the EBkid of the month for June/July 2000.
Email Rachel and Matthew's mommy!
Hunter
Hunter Dandurand was born June 29, 1997. He has the Recessive Dystrophic form of EB and lives in Crystal River, Florida with his mom Denise and dad.
Email Hunter's mommy!
Randy
Randall (Randy) Lowell Mayhew was born on May 22,1997 with Recessive Dystrophic EB, the Hallopeau Siemens subtype. He has one older brother D.J., and two younger sisters Donna and Dalayna, all are eb free. Randy's family lives in Columbus, Ohio.
Email Randy's mommy!
Click Here to visit their Home Page!
Samuel
Samuel Arcides Diaz was born on September 16th, 2005 and has the Recessive Dystrophic form of EB. He is Allison & Julio Diaz' first child and they live in Spokane, Washington.
Email Samuel's mommy!
If your child has EB and you would like his or her photo on this page, please email Silvia...THANK YOU!!
Playing: Because you loved me by Celine Dion There is a destiny that makes us brothers, no one goes his way alone: all that we send to the lives of others comes back into our own. - Edwin Markham Website maintained and graphics by Princess Silvia | Sleeping Angel Web Design
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