EB
Info World
The Children with EB are called "Butterfly Children" because in spite of the extreme fragility of their skin (like a butterfly wing), that blisters at the slightest touch, they take on life and light it up with their bravery.
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 utterfly
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- Recessive Dystrophic -
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We hope the pictures of these special children will touch your heart.
Jonathan
Jonathan was born May 11, 1999. He has the Recessive Dystrophic form of EB, and lives in New Britain, Connecticut with big sister Ashley and mom & dad: Dominic and Brenda.
Jonathan was the EBkid of the month for May 2000.
Click here to go to his Homepage!
Ian
Ian Evan Swarr was born May 28, 1998. He has the Recessive Dystrophic form of EB, and lives in Lancaster County, Pennsylvania, with mommy Delicia and his step-dad Troy and his little brother Noah. Noah was born November 20, 2004 and Delicia is due with a new baby on the same day (2006). Grandma Brenda and Grandpa Carl live next door, they help with the care of the kids.
Ian was the EBkid of the month for March/April 2000.
Ettore
Ettore Buonocunto was born June 2, 1992. He has the Recessive Dystrophic form of EB, and lives in Grottaglie, a little village near Taranto, Italy, with his mom & dad: Giuseppina and Danilo. Giuseppina is a pediatrician and is the organizer of the Italian EB Conferences.
Click here to go to Ettore's mommy page about EB
Rachel & Matthew
Rachel Nicole Barber was born on September 22, 1998. Her little brother Matthew was born August 28, 2000. They both have the Recessive Dystrophic form of EB and live in Delaware, Ohio, with their mom and dad, Molly and Greg.
Rachel was the EBkid of the month for June/July 2000.
Email Rachel and Matthew's mommy!
Hunter
Hunter Dandurand was born June 29, 1997. He has the Recessive Dystrophic form of EB and lives in Crystal River, Florida with his mom Denise and dad.
Randy
Randall (Randy) Lowell Mayhew was born on May 22,1997 with Recessive Dystrophic EB, the Hallopeau Siemens subtype. He has one older brother D.J., and two younger sisters Donna and Dalayna, all are eb free. Randy's family lives in Columbus, Ohio.
Click Here to visit their Home Page!
Samuel
Samuel Arcides Diaz was born on September 16th, 2005 and has the Recessive Dystrophic form of EB. He is Allison & Julio Diaz' first child and they live in Spokane, Washington.
If your child has EB and you would like his or her photo on this page, please email Silvia...THANK YOU!!
Playing:
Because you loved me by Celine Dion
There
is a destiny that makes us brothers, no one goes his way alone: all that
we send to the lives of others comes back into our own. - Edwin Markham
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Last Updated: August 20, 2006
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