The Children with EB are called "Butterfly Children" because in spite of the extreme fragility of their skin (like a butterfly wing), that blisters at the slightest touch, they take on life and light it up with their bravery.

Thutterfly Children™ is a registered trade mark of DEBRA UK

- Recessive Dystrophic -

Page 4

Want to chat with other EB parents and patients?

Click to join EBzone

EBzone is the oldest and largest EB community!

We hope the pictures of these special children will touch your heart.

Lance

Lance Ballantine was born April 19, 1999. He has either a mild localized or generalized RDEB. 
Lance and his sister Abby reside with their father in North Bend, WA and attend the local grade school. Sadly, Lance's mom was killed in a car accident in February 2006. 

Email Lance's aunt Janelle

Lizie

Elizabeth "Lizie" Kaylee Fernandez was born November 19, 1994. She has the Recessive Dystrophic form of EB and lives in Forth Worth, Texas, with her mommy Jenny, her grandmother, her 3 aunts/uncles and one cousin.

Lizie was the EBkid of the month for February 2000.

Email Lizie's mommy

Harlee

Harlee Suzanne Bass was born October 28, 1997. She has the Recessive Dystrophic form of EB and lives in Lynn, Alabama, with her parents: Eric and Suzanne.

Email Harlee's mommy!

Jessica

Jessica Peres Pimentel was born on November 26, 1991. She has the Recessive Dystrophic form of EB and lives with her parents José Luiz and her Momma Maria Cecilia and the dog Pippi in São Paulo , Brazil.

Email Jessica's mommy!

Cynthia

Cynthia Michelle Daniels was born October 23, 1996. She has the Recessive Dystrophic form of EB (Inversa Subtype-mild, non-webbing). She lives outside of Houston, TX with her older sister, Jennifer, and her mom and dad: Mark and Mary.

Email Cynthia's mommy!

Click Here to visit her Home Page!

Katherine

Katherine Elizabeth Bartos was born June 13, 2000. Diagnosed with dystrophic form of EB (subtype unknown yet). She lives with her mom Draha, dad Milan, grandma Eva, four miniature daschunds Vendelin, Kryspin, Daria, and Max and a cat Vasut in Sugar Land, Texas.

Email Katherine's mommy!

Oxlee

Oxlee Jr. was born on August 25, 2001 in North Carolina. He was born missing skin on his hands and feet. Originally he was diagnosed transient, however, further DNA testing hinted towards RDEB. Definitive results were never reached on his DNA.
Oxlee is an otherwise healthy, active child. He lives at home in NC with his daddy, Oxlee Sr, a US Marine and his mommy, Cynthia.

Email Oxlee's mommy!

Charlotte

Charlotte Elizabeth Brown was born on August 7, 2005. She was diagnosed with RDEB. The DNA results are not back to tell whether its HS or NON-HS, however, it's believed to be NON-HS. Her family lives in Birmingham Alabama. Charlotte has an older brother BEN (16 yrs old as of 2006) and a BIG GIRL sister ANNA (5 yrs old as of 2006). Her siblings are both EB free. Mommy and Daddy are Jerry and Debbie Brown. 
We love her with all of our hearts!! She is so special, not because of the disease but because she is our CHARLOTTE. :)
Love always,
Daddy, Mommy, Sissy and Big Bro 

Email Charlotte's mommy!

If your child has EB and you would like his or her photo on this page, please email Silvia...THANK YOU!!

Playing: Because you loved me by Celine Dion
If you have built castles in the air, your work need not be lost, there is where they should be. Now put foundations under them. - Thoreau
Website maintained and graphics by Princess Silvia | Sleeping Angel Creations & Services
Last Updated: 03/19/2007