EB
Info World
The Children with EB are called "Butterfly Children" because in spite of the extreme fragility of their skin (like a butterfly wing), that blisters at the slightest touch, they take on life and light it up with their bravery.
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- Recessive Dystrophic -
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Avery
Avery Raymond Perez was born on November 2, 2001. He has been diagnosed with dystrophic EB (subtype unknown). He most likely has a more localized recessive form. He lives with his mom, Carrie, his dad, Ray, and 2 dogs Elli and Laney in O'Fallon, MO.
Email Avery's
mommy!
Zachary
Zachary Alan Johnson (Zach for short) was born on Feburary 5, 2002. He has been diagnosed with RDEB and is considered to be on the milder side. He lives with his mommy and daddy (Chad and Terasha) and also his dogs, Sammy and Mac and his kitty, Ally in Warrenton, Missouri.
Bianca
Bianca Maria Contreras was born on September 17, 2002. She was diagnosed with RDEB - Sub-Type Unknown, and lives in Miami Beach, Florida, with her mommy and daddy. She is such a blessing in disguise. She is a very happy and interactive baby! We do not know where we will be without her...Currently she has been diagnosed with a mild case of RDEB. Her main problem areas are her legs, feet, hands, elbows and mouth. No additional areas are involved.
Taylor
Taylor Kirin was born June 25, 1997. She has the Recessive Dystrophic form of EB and lives in Wayland, New York with mommy Sandy and sister Sarah, born in 1994, EB free.
Joshua
Joshua Jaramillo was born on June 15, 1996. He has the Recessive Dystrophic form of EB, the Hallopeau Siemens subtype, and lives in Santa Fe, New Mexico with his mom and dad.
Nicole
Nicole Marie Ibarra was born February 4, 2000. She has the Recessive Dystrophic form of EB and lives in Chamberino, New Mexico, with her parents: Kimberly and Ramiro.
Bido
Joćo Gabriel (Bido) was born September 19, 1996. He has the Recessive Dystrophic form of EB, the Hallopeau Siemens subtype. He lives in Belo Horizonte (Brazil) with his parents Cida and Beto, and with his older sister Mirinha.
Yasmin
Yasmin Elsamra was born on September 1, 1997 with RDEB. She lives in Egypt with her mother (hanaa), father (amr, who is a professor of Ophthalmology), and her three brothers free from EB (ali-21 years, hassan & hussein - twins 13 years). Yasmin likes very much drawing, coloring, singing, puzzles, and shares a lot of games with her brothers plus playing with plenty of barbies.
If your child has EB and you would like his or her photo on this page, please email Silvia...THANK YOU!!
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Last Updated: 07/02/2006
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