EB Virtual Quilt

Welcome to the EB Virtual Quilt. Each Square represents an EB child, adult, or an angel in heaven. If you would like to add your child, or yourself please fill out the form below or email me with the following information:

Patient's full name w/nickname (if applicable)* Birth date (death date too if angel)* E-mail address (you do not need to enter it if you do not want it linked) Link to your website (if you have one and would like it linked-if your story or picture is posted on this website and would like to link to that, you can enter that URL) Specify if you like a link on your name Pick One! Link my website Link my Email No Link Form of EB* State/Country you live in* Type of Background for the square Specify name of background (pooh, butterfly, spots, etc.) and row/column where it is located. EX: Pooh bkg, row 5, left column. Please Note: if you have a special background request, I will try to accommodate. If you leave blank I will use a background at my discretion EDIT YOUR SQUARE If you already have a square and you would like to edit it, choose what you would like to edit, and then enter in the comments the information to edit. PLEASE also fill out the email address above and/or the Name of the Child so I know WHICH square to edit!!! Thank You! Pick One Edit Name Edit Date/s Edit Email Edit website address (URL) Edit Form of EB Edit State/Country Edit Background Edit Location If multiple information needs to be edited, please specify below. Thank you! Forms submitted without the required full name, birth date, State/Country & form of EB will be deleted. he webmaster updates the website once a month. Thank you for your patience!

About the 'Real' Fabric Quilt...

Our EB community is also putting their needles in place to make the first ever FABRIC EB Quilt! This is done to spread awareness. Please click here to go to that page! So far we have donated the quilts to the EBMRF for fund raising.  If you have EB, if your child has EB or if you lost a loved one to EB, I hope you can participate in this project. Once the quilt is finished we will post pictures of it on this website. 

1. Quilt Square Size 13X13, only decorate or write inside the 10x10
2. Any Fabric
3. You can use any means to decorate/write. Embroidery, Cross-stitching, Iron-on, Fabric Paint.. anything you can think of.
4. Info that every quilt square should have:
--Name
--Birthdate (death)
--Form of EB
If you are interested in making the quilt square let me know so I can keep you posted on the address on where to send it!

Brogan Ayre B- 28th March 2000 D- 4th February 2001 Junctional with pyloric atresia United Kingdom	Brittany Jo Woneis Born: October 18 , 1985 Died: October 4,2003 Recessive Dystrophic/HS Colorado, USA	Jonathan Michael Gionfriddo "Buddy" May 11, 1999 Recessive Dystrophic Connecticut, USA
Petra Rehberg June 11, 1967 Recessive Dystrophic/HS Germany	Tricia Howe B- April 22, 1974 D- July 15, 2002 Recessive Dystrophic/HS Wisconsin, USA	Veronica Leigh Milano May 24, 1998 Dominant Dystrophic New York, USA
Tyler Lauren Johnson B- December 4, 1994 D- May 27, 1995 Junctional Herlitz Illinois, USA	Lauren Marie Johnson B- May 25, 1993 D- October 13, 1993 Junctional Herlitz Illinois, USA	Michael Scott Milano November 9, 1974 Dominant Dystrophic New York, USA
Mallory Hagler June 18, 1998 Herlitz Junctional New Jersey, USA	Lisa van Gerwen B- 1st May 2000 D- 17th July 2000 Junctional Herlitz Netherlands	Katherine Elizabeth Bartos June 13, 2000 Dystrophic Texas, USA
Jennifer Deprizio B- December 14, 1979 D- May 18, 2005 Recessive Dystrophic Florida, USA	Xander Stuhan Stowe March 18, 2001 Junctional Non-Herlitz Missouri, USA	Nicholas Alexander Zahorcak "Nicky" November 25, 1996 Recessive Dystrophic/HS California, USA
Coleby Brystal Myers B- October 28, 1998 D- November 7, 1998 Junctional w/ Pyloric Atersia Tennessee, USA	Adrian Michael Ortiz "Bubba" B- October 16, 2001 D- December 4, 2001 Junctional Herlitz Oklahoma, USA	Andrew Michael Burgy "Andy" Born December 30, 1993 Died March 25, 2003 Recessive Dystrophic Wisconsin, USA
Sarah Laine Morgan Redding October 4th, 1990 Simplex Weber-Cockayne Tennessee, USA	Eric Colson Wooten "Cole" February 9th, 1999 Simplex Dowling-Meara Georgia, USA	Joe Morin August 5, 1976 Recessive Dystrophic/Inverse New York, USA
Miranda Noel Blattel "Randa" December 14, 1998 Recessive Dystrophic Missouri, USA	Christina Lee Wade "Tini" March 28, 1996 Simplex Massachusetts, USA	Eric Lee Hanlon October 2, 1981 Recessive Dystrophic Illinois, USA
Faith Lynn Smith June 11, 2000 Junctional-Non Herlitz Minnesota, USA	Liam Bray-Simpson 13 January 2000 Junctional (non-Herlitz) very mild London, England	Caylin Marie Saver B- February 24, 2000 D- April 8, 2000 Junctional Herlitz Minnesota, USA
David William Spanton 8th August 1986 Recessive Dystrophic Holt, North Norfolk, United Kingdom	Johnathon Charles Yeargan December 7, 1993 Alabama, USA	Dillyn Joshua Thomas "Pickle" February 6, 2001 Utah, USA
Mary Elefteria (freedom) Apostole May 14, 2001 Simplex New Jersey, USA	Vasile (Bill) Apostole August 29, 1961 Simplex New Jersey, USA	Madeline Mae Fields "Maddy" Born and Died Dec. 10th 1999 Junctional California, USA
Dennis Alexander Parlevliet June 11th, 1993 Recessive Dystrophic HS The Netherlands	Sophia Maria Litynski B-May 7, 2001 D-February 9, 2002 Junctional probable "Herlitz" Wisconsin, USA	Stephen Frederick Thomas September 20, 2001 Dominant Dystrophic w/Recessive traits Greene County NY, USA
Danny Davis November 22, 1991 Simplex w/ Junctional traits Rensselaer County NY, USA	Natali Rose Davis Born and Died November 22, 1991 Simplex w/ Junctional traits Rensselaer County NY, USA	Cynthia Michelle Daniels "Cindy" October 23, 1996 Dystrophic New Mutation Texas, USA
Thomas Isaac Schossow June 24, 2001 Junctional Herlitz NSW, Australia	Jennifer Louise Johnson B- August 29, 1982 D- December 21, 1998 Recessive Dystrophic Illinois, USA	Nyanjau Mbuthia 12-March-2002 Nairobi, Kenya, East Africa.
Melissa D Seldomridge July 2, 1970 Dominant Dystrophic Oklahoma, USA	Danielle Seldomridge September 18, 1990 Dominant Dystrophic Oklahoma, USA	Ramsey Kendall White II April 19, 2005 Junctional Florida, USA
Catherine Wilenchek Iwakawa October 15, 1969 Simplex New York, New York, USA	Casey Seldomridge June 26, 1992 Dominant Dystrophic Oklahoma, USA	Elizabeth Seldomridge December 19, 1994 Dominant Dystrophic Oklahoma, USA
Daniel Timothy Stachoviak B- 06/18/1990 D- 06/06/2002 Recessive Dystrophic Wisconsin, USA	Michelle Johnson 06/26/73 Simplex Tennessee, USA	Joyce Cheah Su Lin B- 5th January 1963 D- 3rd April 1993 Recessive Dystrophic Auckland, New Zealand
Gary Alan Jones B-10/21/50 D-3/13/96 West Virginia, USA	Jennifer Mae John B-September 24, 1983 D- November 27, 1986 Junctional California, USA	Daniel Miguel Ceja "Papa Bear" February 12, 2001 Simplex Weber-Cockayne California, USA
Connor Michael Ashe March 11, 2000 Recessive Dystrophic Massachusetts, USA	Jamie Mae John B- December 7, 1984 D- July 11, 1998 Junctional California, USA	Connor Theodore Schmidt Oct. 24, 2000 Simplex - Dowling-Meara Pennsylvania, USA
Charlee Ellen Hobbs 16/01/2002 Simplex Australia	Logan Henry Braun B-08-28-98 D-11-27-98 Junctional Herlitz Minnesota, USA	Edward Paul Kling (Eddie) B-9/20/57 D-10/4/01 Recessive Dystrophic Ohio, USA
Nicholas Hunter Smejkal Born and Died March 7, 2001 Junctional Texas, USA	Adana Mary Forsyth 12th January 1998 Recessive Dystrophic Montrose Scotland	Davey Allen Harrell 12-24-1990 Simplex Dowling Meara Indiana, USA
Alex Silveria-Coil November 18, 1993 Recessive Dystrophic-HS California, USA	Brandi Silveria-Coil December 22, 1994 Recessive Dystrophic-HS California, USA	Corey Silveria-Coil October 18, 1992 Recessive Dystrophic-HS California, USA
Hayley Nicole Winder October 15, 2000 Pennsylvania, USA	Caleb Christian Summers October 16, 1998 Simplex New York, USA	Nyanjau Mbuthia B- March 11th, 2002 D-September 1st, 2002 Junctional Nairobi, Kenya, East Africa
Jamia Alayea Finley "Mia" B- August 27, 2002 D- October 26, 2002 Junctional Alabama, USA	Joshua Aidan Summers October 16, 1998 Simplex New York, USA	Kiara Leshay Finley B- 05/05/2001 D-07/11/2001 Junctional Alabama, USA
Antonio William Torres November 26, 2000 Recessive Dystrophic Rhode Island, USA	Mercedes Rain Price September 15, 2005 South Carolina, USA	Bianca Maria Contreras September 17, 2002 Recessive Dystrophic Florida, USA
Hannah Alexis Enlows April 11, 2000 Simplex dowling merea South Carolina, USA	Sebastian M.Hinkle April 25, 1992 Louisiana, USA	Hayley Nicole Winder October 15, 2000 Simplex Pennsylvania, USA
Raymel Tariq Gerald May 13, 2001 Simplex Virginia, USA	Tracey Adams June 19, 1971 Dystrophic England	Jessica Simpson "Jess" November 11, 1979 Recessive Dystrophic- HS Virginia, USA
Zackery Connor Troop "Zackey" September 4, 2002 Recessive Dystrophic Utah, USA	Abriana Renee White-Hulce "Abbi" April 29, 1998 Recessive Dystrophic Colorado, USA	Jesse van Zijp 19-08-2002 Junctional-Non Herlitz The Netherlands
Ethan Gabriel Burrola. 10-11-98 Dystrophic Kansas, USA	Barbara Ramsey 09/13/1952 Recessive Dystrophic Kansas, USA	Jacob Thomas Myers November 25, 2003 Recessive Dystrophic Georgia, USA
Anthony Joseph Milano A.J. 02/07/2003 Dominant Dystrophic New York, USA	Michelle Campbell Sept 6, 1969 Junctional EB with Pyloric Atresia Canada	Dillon C. Evans Lil Gator" December 12, 2002 Mississippi, USA
Landon Turner Born: 3-30-1997  Died:   8-4-1997 Junctional Wisconsin USA	David Matthew Alton  (Matthew) Born: aug.22,1995  Died:   0ct. 29, 1995 Unknown form of EB Michigan USA	Mya Lynn McBride April 10, 2002 Simplex Illinois, USA
Alexander Wolfgang Apostole July 2, 2005 Simplex Utah, USA	Gemma Riley-Laurin May 9, 1977 Dystrophic Ontario,  Canada	Marinda Christel Mook Born: 25-12-2001 Died:   30-3-2003 Junctional The Netherlands
Weston Michael Zucha August 18, 1994 Recessive Dystrophic Texas, USA	Ashley Diane Weis Feb. 17, 2003 EBS Dowling Meara Washington, USA	Leslie Jaymes Morris "Les" March 17 1988 Recessive Dystrophic Ontario, CANADA
Justin Levy Born: February 29,1984 Died: June 1, 2005 Recessive Dystrophic Kansas, USA	Melissa Chatfield "Lissa" 06/07/1982 Simplex Weber-Cockayne Colorado, USA	Kobe Thornsberry Born: 2/13/03 Died:   6/4/03 Kentucky, USA
DeAndre Kiniveon Thomas 04/19/99 Simplex Georgia, USA	Andrew Manuel Aguilar Born: 02-03-03 Died: 6-20-03 Junctional Herlitz Missouri, USA	Colin Michael Shevlin 6-12-00 Simplex Pennsylvania, USA
Roy Saucedo 10-13-76 Texas, USA	katie-Ysabel  Ann Martinez Unknown (Simplex?) Indiana, USA	Kelly Ann Taylor August 10,1993 Junctional Missouri, USA
Brooke Ann Seasoltz "Snoopy" July 17, 2003 Mild form of EB (Simplex?) Pennsylvania, USA	Sophia Colleen "Sophie" 12/26/00 Recessive Dystrophic Indiana, USA	Michael Dustin Allard Acs "Pooh" May 10, 2000 Simplex Ontario, CANADA
Przemek Sobieszczuk 06.08.1978 Eb Hereditalia POLSKA	George Michael Acs March 07, 1980 Simplex Ontario, CANADA	Matthew - Patryk Sobieszczuk 12.07.2000 Eb Hereditalia POLSKA
Alicia Janine Yates 7/16/99 Severe EB Simplex, probably DM Ohio, USA	Alexander Steven Glover 10/27/1998 Simplex-Dowling Meara Ohio, USA	Angela Shawn Glover 07/02/2001 Simplex-Dowling Meara Ohio, USA
Eduardo Faria Lua Carneiro "Dudu" Born: 5/8/03 Died: 9/7/03 Junctional Rio de Janeiro - Brazil	Garrett James Denslaw Born: 12/6/04   Died: 12/18/04 Simplex DM Florida, USA	Amy Johnson 30-5-1997 Dominant Dystrophic South Australia
Kenneth Dorman II 10-22-04 Junctional New York, USA	Brittany Dorman 11-7-91 Junctional New York, USA	Samantha Renee Denslaw Born: 8/29/02 Simplex DM Florida, USA
Emily Ann Lacaire 8-29-03 Junctional Massachusetts, USA	Brooke Ann Seasoltz July 17, 2003 Simplex Pennsylvania, USA	Arielle Marie Glover 03/18/1997 Simplex-Dowling Meara Ohio, USA
Julia Fay Dorton 11/29/2001 Dystrophic Colorado, USA	Danica Tarrant 11-23-2002 Simplex - Weber-Cockayne Georgia, USA	Rebecca Paige Denise Stalker B -15/04/2004  D - 01/07/2004 Junctional Herlitz Shropshire,  UK
Christian Joseph C. Sebastian  'CJ' July 21, 1997 GABEB Junctional non-herlitz Philippines	Kael Fontaine B-September 23rd 2004 D-December 17th 2005 Junctional Quebec, Canada	Paul Michael Allen Daborn Born: 09/02/1990 Died: 02/03/1990 Junctional England
Paige Elizabeth Phillips B- July 28, 2003  D- May 14, 2004 Junctional Non- Herlitz Illinois, USA	Lauren Marie Rader B- July 26, 2003  D- March 18, 2004 Junctional Non- Herlitz Kentucky, USA	Hollie Louise Shaw 12th march 2004 Recessive Dystrophic West Yorkshire, England
Kaelin Marie Whitley February 16, 2002 Simplex Weber-Cockayne Texas, USA	Kevin Monroe Whitley August 6, 1973 Simplex Weber-Cockayne Texas, USA	Zachary Johnson February 5 Missouri, USA
Pedro Miguel Ramos Brites Manso 03-11-1973 Simplex Portugal, Europe	Ava Elizabeth Medeiros Born: 7-14-04 Died: 11-20-04 Junctional with Pyloric Atresia Massachusetts, USA	Collin Rave Brenholt 08/24/03 Junctional Wisconsin, USA
Jonathon Connolly August 7, 1999 Dystrophic Massachusetts, USA	Olivia Jayne Katz-Dixon "Livvy" Born: Dec. 13, 2004 Died: Jan. 21, 2005 Junctional New York, USA	Michael Michelle Stratmann Born: April 7th 1975  Died: April 21st 1999 Recessive Dystrophic Illinois, USA
Ava Elizabeth Mello 12/29/02 Simplex - DM Massachusetts, USA	Emily Hunter Houston January 16, 2005 Recessive unknown type Texas, USA	Jaydon Lance Parker December 31, 2002 Recessive unknown type Mississippi, USA
Oxlee  Rodriguez, JR. August 25, 2001 Recessive Dystrophic North Carolina, USA	Sadie Ann Haley Born: 04-24-04  Died: 01-25-05 Junctional Herlitz Georgia, USA	Savana Leigh Wagner "Banana" July 7, 2004 Dominant Dystrophic Pennsylvania, USA
Izabellah Grace Cummins 6/10/05 Unknown Missouri, USA	Elliott Morgan Steese Born: February 14, 2005   Died: April 8, 2005 Simplex South Carolina, USA	Evie McLean 3/13/00 Simplex South Carolina, USA
Grace Catherine Peshkur 3/29/02 Recessive Dystrophic New York, USA	Sara Olivia Norman DOB: January 30th,1991 DOD:  January9th,1999 Recessive Dystrophic Wyoming, USA	Alma Estberg DOB: March 5, 2005 DOD:  March 11, 2005 Simplex Sweden
Michael Alan Covert September 30, 1982 Junctional Ohio, USA	Kylie Palmer   "Ky Bear" 07/21/1998 Dystrophic Michigan, USA	Chastity Nicole McNiel February 21, 1984 Recessive Dystrophic Texas, USA
Gabrielle Hope Crall July 7, 1991 Weber-Cockayne Syndrome (Simplex) Ohio, USA	Madysen Elaine Hostetter December 26, 1998 Simplex Pennsylvania, USA	Rachel Nasuti April 4, 1990 Recessive Dystrophic Michigan, USA
Samuel Arcides Diaz  (Sammy) 09/16/05 Recessive Dystrophic Washington, USA	Gus David Minga III  "Dae"ui Born: 01/12/79 Died: 02/11/95 Recessive Dystrophic Mississippi, USA	Jeida Ashley Duque October 23, 2003 Simplex Florida, USA
Kallista Ann T. August 27, 1999 Simplex Dowling Meara California, USA	Antonio J. Bevacqui May 6, 2000 Recessive Dystrophic New Jersey, USA	Kiralee Hautzenrader September 30, 2003 Simplex Iowa, USA
Austin Johnson Born Feb19th, 2006 Died April 30th,  2006 Junctional California, USA	Kelly (Holland) Culp 12/08/69 Dominant Dystrophic Pennsylvania, USA	Sarah Oliveira September 27, 1998 Recessive Dystrophic New Jersey, USA
Brian Figaroa 10/05/2006 Junctional Florida, USA	Sherri L. Scott 02/22/1965 Junctional Indiana, USA	Ethan James Fox   "Little E" 07-19-03 Simplex DM Michigan, USA
Tracy Blair June 9, 1971 Simplex, Weber-Cocayne Colorado, USA	Marc Alexander West 27th May 2000 Simplex Virginia, USA	Jessica Reinert November 4, 1988 Dominant Dystrophic Massachusetts, USA
Aaron James Blair  "A.J." 09/20/1993 Simplex, Weber-Cocayne Colorado, USA	John Mark Hartmann August 22, 1996 Dominant Dystrophic New Jersey, USA	Mark E Hartmann May 24, 1958 Dominant Dystrophic New Jersey, USA
Kate Lynn Thompson 03/17/2004 Unknown - possibly simplex w/ junctional traits California, USA	Josiah Bryan Spires August 28, 2006 Simplex-Dowling Meara Louisiana, USA	Nia Wright 4/2/95 Unknown New York, USA
Maximus Amin Bloemendaal born 10 October 2006 died 12 december 2006 Recessive Dystrophic The Netherlands	Amy "Bubbles" Jarosz April 16, 1988 Simplex Ohio, USA	Landon Cole Kratzer May 13th, 2005 Simplex: Dowling Meera Pennsylvania, USA
Luis Pablo Villalta December 23rd, 1999 Simplex Costa Rica	Ryan Hulbert 12/01/1972 Simplex Virginia, USA	Christian Monroe Whitley 06/27/2005 Simplex Weber-Cockayne Texas, USA
Ian Boys March 13th, 1993 Recessive Dystrophic Texas, USA	Mehdi Issaad 7/14/2007 Dystrophic Algeria	Phoenix Lawson Amburn 02/20/06 Simplex USA
Macie Kate Majeres B: March 15, 2007  D:August 15, 2007 Junctional Iowa, USA	Jaylin Elizabeth Pare B: September 20, 2007  D:October 7, 2007 Junctional Virginia, USA	Nathaniel Richard Miller B~April 30,2007  D~June 20,2007 Junctional-Herlitz Ohio, USA
Alan Daniels 01-30-1977 Dominant Dystrophic Kansas, USA	Victoria Proctor January 21st, 1990 Simplex California, USA	Jacob Mckenzie Pauley September 30, 1997 Simplex Ohio, USA
Alma Ellen Nelly Estberg B: 3-5-05 D: 3-11-06 Simplex Sweden	Amarah Cox July 13th, 2006 Unknown California, USA	Jordan Herreid B: 4-26-03 D: 7-30-03 Junctional-Herlitz Idaho, USA
Cristina Perez July 4, 1983 Recessive Dystrophic California, USA	Alexander Luciano Zahorcak "Alex" Born and Died March 1, 1995 Recessive Dystrophic Mesa, Arizona, USA	Cheyenne Sioux Hodkinson "chey bug" May 19, 1996 Recessive Dystrophic Ohio, USA

If you have a square in the above EB Virtual Quilt, please adopt the following button and link it to this page or to the main EB Info World page (http://www.ebinfoworld.com)
Thank You!

Do a right click on the square and choose "save as" or "save target" and then upload to your directory. Please DO NOT link to the image!