The following illustrations are
an example of a hand wrapping technique found to be helpful in the
protection and preservation of RDEB involved hands. The instructions
are for very small hands and some adjustments probably need to be
made for larger hands. Lorraine also have some suggestions if anyone
is having trouble with the thumb pulling in.
Please note: these instructions may seem overwhelming at first, but
after a little practice and as your child gets used to the process,
it becomes a worthwhile routine.
Keep in mind the positive results and don't get discouraged!
Note from the webmaster: this
is a graphic intense page. I recommend waiting for it to load and
then print it out.
WATCH THE VIDEO OF THIS
DEMONSTRATION AT THE STANFORD WEBSITE:
http://dermatology.stanford.edu/gsdc/eb_clinic/eb-videos.html
All illustrations
are of the left hand.
Step 1 is an optional
application of Vaseline Gauze to the palm of the hand. Use a 3"
X 9" piece of Vaseline Gauze. Cut about 2" off one end,
then slit lengthwise about a 4" length, about 1" down from
the top edge.
Wrap around hand with 1" strip
between thumb and index finger.
This provides some resistance from
retracting.
Fingertips can be left exposed
to some degree, so that tactile sensation can be experienced.
At this point it may be necessary
to start a 2nd roll of 1" gauze. Make one overlap and continue.
Views 10-19 Front of Hand
Spaces in palm bandaging will be covered by criss/cross bandaging
of web spaces.
Web spacing can be randomly done.
The point is to cover any open areas of the palm while
gently pulling a wrap between each web space
Be very careful to never wrap or pull too tight!
Be sure to have slight tension
in web spaces.
Suggest wrapping additional 1/2
roll of bulky bandage around arm from the wrist to the upper arm.
(Held by Tube Gauze) Provides padding of forearm and elbow.

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