Help Spread The
Word!
If you would like
to link to EB Info World, you can help educate others about this devastating
and life threatening skin disorder.
We have a dream, we need a cure!! Knowledge
is power!
I would prefer
if you used the ribbon graphics, but you may use any one of the images
below our list of supporters.
Do a right click on the button/banner of your choice and choose "save
as" or "save target" and then upload your button to
your directory. Please DO NOT link to the images!
Please link
the images to this page:
EB Info World
http://www.ebinfoworld.com

Blinkies courtesy of:
Thank you Joanna!!
----->>> MORE
Blinkies are available HERE....
http://www.carinacharms.com/cgi-bin/carina/CH2661.html
http://www.personalizedcause.com
http://goldnthings.com/awareness_ribbons.htm
http://www.hormoneprofile.com/healinghalos.htm
http://www.awarenessribbon.com/
More blinkies and
adorable Dollz available for adoption to raise awareness for
Epidermolysis Bullosa are available at Cristina's Castle
website!
Go
take a peek!!
Here are some questions I get all the time.
Why is the ribbon
red?
Won't the ribbon being red confuse people since red is associated with AIDS?
Since the ribbon is red like the one for AIDS, won't people think that EB can be caught because we have the same
ribbon color?
Can we change it?
Every color is associated with a more well known cause and
that should not be the reason to change it. For example, pink is
more well known for breast cancer awareness, yellow with 'come
home', dark blue with child abuse etc. EB being as
rare as it is will never be recognized on its own just for the
ribbon color, that's why it wasn't an issue with me to have the
color confused with anything else when I had to pick it.
At the time that I did it, back in 1999, the color red was the most
obvious choice because of the wounds, blood and pain associated with
EB. I still like and stand by my choice. A ribbon that is white
would not symbolize the pain, a ribbon that is gold would not
symbolize the wounds and a ribbon that is blue would not symbolize
the blood, only red accomplishes this in one big swoop.
I really doubt anyone would jump to the conclusion that EB is
something that it's 'caught' like AIDS is just because we share the
ribbon color. As long as the words EB or Epidermolysis Bullosa
appear somewhere near the ribbon, it will invite questions and
curiosity, not prejudice.
Can we change it? Hmmm... I think it's too late for that. So many
organizations are already using red for EB, and I would hate to
confuse the issue.