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The Silver Ribbon Campaign

for the support and awareness of children with disABILITIES


I have found tons of great items on eBay for my son, anything from (new) wound care supplies, to Emu Oil at a fraction of the original cost. Click below and see what you may find! You can also use eBay to sell your used stuff you no longer need for some extra cash.
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~Link To Us~

Help Spread The Word!

If you would like to link to EB Info World, you can help educate others about this devastating and life threatening skin disorder.
We have a dream, we need a cure!!
Knowledge is power!

I would prefer if you used the ribbon graphics, but you may use any one of the images below our list of supporters.
Do a right click on the button/banner of your choice and choose "save as" or "save target" and then upload your button to your directory. Please DO NOT link to the images!

Please link the images to this page:
EB Info World
http://www.ebinfoworld.com

       

Blinkies courtesy of: Thank you Joanna!!

----->>> MORE Blinkies are available HERE....

Like these ribbons? You can purchase EB awareness ribbons at the following websites

http://www.carinacharms.com/cgi-bin/carina/CH2661.html

http://www.personalizedcause.com

http://goldnthings.com/awareness_ribbons.htm

http://www.hormoneprofile.com/healinghalos.htm

http://www.awarenessribbon.com/

More blinkies and adorable Dollz available for adoption to raise awareness for Epidermolysis Bullosa are available at Cristina's Castle website! 
Go take a  peek!!


Here are some questions I get all the time.

Why is the ribbon red? 
Won't the ribbon being red confuse people since red is associated with AIDS?
Since the ribbon is red like the one for AIDS, won't people think that EB can be caught because we have the same ribbon color? 
Can we change it?

Every color is associated with a more well known cause and that should not be the reason to change it. For example, pink is more well known for breast cancer awareness, yellow with 'come home', dark blue with child abuse etc. EB being as rare as it is will never be recognized on its own just for the ribbon color, that's why it wasn't an issue with me to have the color confused with anything else when I had to pick it. 
At the time that  I did it, back in 1999, the color red was the most obvious choice because of the wounds, blood and pain associated with EB. I still like and stand by my choice. A ribbon that is white would not symbolize the pain, a ribbon that is gold would not symbolize the wounds and a ribbon that is blue would not symbolize the blood, only red accomplishes this in one big swoop. 
I really doubt anyone would jump to the conclusion that EB is something that it's 'caught' like AIDS is just because we share the ribbon color. As long as the words EB or Epidermolysis Bullosa appear somewhere near the ribbon, it will invite questions and curiosity, not prejudice. 
Can we change it? Hmmm... I think it's too late for that. So many organizations are already using red for EB, and I would hate to confuse the issue. 

~Supporters~

Here is a list of proud supporters of EB Info World who are wonderfully spreading the word and raising awareness by linking to us. Thank you and God Bless you all!!!

Please note... if you are linking to EB Info World's main page and your name is not listed here, let me know or fill out the form below! I would love to link to you. Thank you!!

Website Title
URL where you link to EB Info World:
Your Name:
Your email address:


Please Note: submissions without a URL will be ignored.

WebGurus Katia & Max Beata Jen O'Neil Laura Lencia Brenda Gionfriddo Linda Rosenbloom Yahoo Directory Silver Ribbon Campaign Florida Medical Network The Mayhew Family Capable Corners Miranda Blattel Angelina Bennett Mary Hatcher Nick Zahorcak Ampfarm Hellenic Association of Dermatology Hon Kim Foster Universita' di Catania (Italian) Cynthia's Place Bruce Gunn AreUfit.com Capable Corners Inutil (spanish) Checkmate Custom Cristina's Castle Keepers of Truth EB Trek dEBra Nederland @brint.com Directory dmoz.org Directory Google Directory Peggy's House Nordic EB Forum Friends of Mimouska   Microcephaly Network Max McShane Memorial Wrath of Angel Pony Girl Owen Edwards Ribbon Campaigns Wayne-Westland Friends of EB Support Ribbons Cincinnati's Children's Medical Center IUPUI EB Page Violet's Web Design BDID EB Directory Health Care Resources Skin Disorder Links Clint Adams Health Care Resources Skin Disorder Links dEBra Belgium

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If you would like to link to the Children with EB pages, please use one of these buttons/banners below and link to: http://www.ebinfoworld.com/children.htm

   



Thank You!


EB Info World fully supports EBAN's mission

  

 


How lovely to think that no one needs wait a moment, we can start now, start slowly changing the world!
--Anne Frank



~ Please support Medical Research of Epidermolysis Bullosa ~
 

EB Info World was Created on 11/20/1997 
Last Updated: March 23, 2007
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