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U.S. Local Support Groups 

California (Southern)

Southern California Support Group
Contact: Gloria at gloria_lira@hotmail.com
Website: www.socaleb.homestead.com

California (Northern)

Northern California Support Group
Contact: Lorraine Spaulding @ mom25eb1@hotmail.com
Phone: 209-862-1315
Website: http://www.ebinfoworld.com/ebcalifornia.htm

Connecticut

EB Support Group of Connecticut
Contact: Laura Morris @ LAURAJMORRIS@aol.com or
Brenda Gionfriddo phone:860-721-0848 email: ebmommie@snet.net
website: http://www.ctebsupportgroup.faithweb.com

Florida

Southern Florida Support Group
Contact: Sally Contreras at simba9960@yahoo.com
Phone: Cell 786-487-8593
Northern Florida Support Group
Contact: Lorraine Cameron at lorrainecfc@aol.com
Phone: 352-332-0566

Georgia

Contact: Sandy Adams at adams3611@charter.net
Phone: 770-534-4489 
 
Indiana

Indiana Support Group
Contact:  Bruce Gunn at bgunn33@tiptontel.com 
Phone: 765-292-2327
Contact: Kathy Crecelius at Kcrecelius@clarian.org

Kentucky

Contact: Leslie Rader at leslie.rader@insightbb.com
Phone: 502-742-1954

Michigan

Contact: Julie Turner
Address: P. O. Box 1124, Sterling Heights, Michigan 48311
email: julie@befriendeb.com
phone: 586-978-9244
website: http://befriendeb.com/

Minnesota

Minnesota Support Group
Contact:
Emily Holloway 
e.spurrier@mchsi.com
Phone: 952-484-3318 
 
New England

New England Support Group
Contact: Liane Ottley-Torres or Sherri Wade or Kevan Lewis
Contact Email: lianejo@netscape.net
Contact Telephone: 401-277-9883 or 781-341-0232 or 401-351-6921
New England Support Group #2
Contact: Troy Medeiros
Contact Website: http://www.everlastingbutterfly.com/EBONE.html
Contact Email: tmedeiros@everlastingbutterfly.com
Contact Telephone: (978) 688-7652

New Jersey

New Jersey Support Group
@ Hackensack University Hospital, Don Imus Pediatric Center
Hackensack, NJ
Contact: Doreen Holstein  201-358-6242

New Mexico

New Mexico Support Group
If you are interested in joining this support group, please contact:
Debbie Kay Hatley of Albuquerque at 505-345-0287, Email: Presleygm@aol.com
Linda Rosenbloom of Las Cruces at 505-523-7385, Email: Rosethings@aol.com
Tammy Bradley of Las Cruces at 505-523-2952, Email: JEB2boys@aol.com

New York

New York Support Group
Contact: Faye Dilgin at kalilla@aol.com
Phone: 718-227-3201

North Carolina

Contact: Stacey Plummer plumcute@nc.rr.com
Phone: 919-338-8104
Website: http://home.nc.rr.com/ncebsupport/

Ohio

Cincinnati EB Support Group
We have four meeting per year and they are held on thursday evenings at Children's Hospital Cincinnati. Call or email for dates and times.
Contact: Connie-Danell Yates @ cyates@cinci.rr.com
Phone: 513-242-4874

Ohio

Central Ohio EB Support Group
Meetings are held in Columbus.
Contact: Molly Barber @ ebkids@earthlink.net
Phone: (740)362-0172

Pennsylvania

Metro Philadelphia EB Support Group
We encourage our neighbors in the South Jersey area to join us!
Contact: Kim Luty @ info@ebphilly.org
Telephone: 856-816-5780
Website: http://www.ebphilly.org/

Pennsylvania

EB Support Group of Hershey Pennsylvania
Penn State Milton S. Hershey Medical Center
Mohler Senior Center
660 Cherry Drive
Hershey, PA  17033
Contact:  (717) 442-0277

Texas

Texas EB Support Group
Contact: Draha Brejchova (281) 980-4746

Utah

Contact: Christie Norton
Phone:  801-229-2835

 If you live in Maine or New Hampshire, please contact Sue Chapman at (207) 767-4581 or schapman2@maine.rr.com

Please contact me to give me more up-to date information on the above support groups or to give me information about new ones. THANKS!

 

   

  

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