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U.S. Local Support Groups
California
(Southern)
Southern California
Support Group Contact: Gloria at gloria_lira@hotmail.com
Website: www.socaleb.homestead.com
California
(Northern)
Northern California
Support Group Contact: Lorraine Spaulding @ mom25eb1@hotmail.com Phone:
209-862-1315 Website: http://www.ebinfoworld.com/ebcalifornia.htm
Connecticut
EB Support Group of
Connecticut Contact: Laura Morris @ LAURAJMORRIS@aol.com or Brenda
Gionfriddo phone:860-721-0848 email: ebmommie@snet.net website: http://www.ctebsupportgroup.faithweb.com
Florida
Southern Florida
Support Group Contact: Sally Contreras at simba9960@yahoo.com Phone: Cell
786-487-8593 Northern Florida Support Group Contact: Lorraine
Cameron at lorrainecfc@aol.com Phone:
352-332-0566
Georgia
Contact: Sandy Adams
at adams3611@charter.net Phone:
770-534-4489 Indiana
Indiana Support
Group Contact: Bruce Gunn at bgunn33@tiptontel.com
Phone: 765-292-2327 Contact: Kathy Crecelius at Kcrecelius@clarian.org
Kentucky
Contact: Leslie Rader
at leslie.rader@insightbb.com Phone:
502-742-1954
Michigan
Contact: Julie
Turner Address: P. O. Box 1124, Sterling Heights, Michigan
48311 email: julie@befriendeb.com phone:
586-978-9244 website: http://befriendeb.com/
Minnesota
Minnesota Support
Group Contact: Emily Holloway e.spurrier@mchsi.com Phone:
952-484-3318 New England
New England Support
Group Contact: Liane Ottley-Torres or Sherri Wade or Kevan Lewis
Contact Email: lianejo@netscape.net Contact
Telephone: 401-277-9883 or 781-341-0232 or 401-351-6921 New England
Support Group #2 Contact: Troy Medeiros Contact Website: http://www.everlastingbutterfly.com/EBONE.html Contact
Email: tmedeiros@everlastingbutterfly.com
Contact Telephone: (978) 688-7652
New Jersey
New Jersey Support
Group @ Hackensack University Hospital, Don Imus Pediatric
Center Hackensack, NJ Contact: Doreen Holstein 201-358-6242
New
Mexico
New Mexico Support
Group If you are interested in joining this support group, please
contact: Debbie Kay Hatley of Albuquerque at 505-345-0287, Email: Presleygm@aol.com Linda Rosenbloom
of Las Cruces at 505-523-7385, Email: Rosethings@aol.com Tammy Bradley
of Las Cruces at 505-523-2952, Email: JEB2boys@aol.com
New York
New York Support Group
Contact: Faye Dilgin at kalilla@aol.com Phone:
718-227-3201
North
Carolina
Contact: Stacey
Plummer plumcute@nc.rr.com Phone:
919-338-8104 Website: http://home.nc.rr.com/ncebsupport/
Ohio
Cincinnati EB Support
Group We have four meeting per year and they are held on thursday
evenings at Children's Hospital Cincinnati. Call or email for dates and
times. Contact: Connie-Danell Yates @ cyates@cinci.rr.com Phone:
513-242-4874
Ohio
Central Ohio EB
Support Group Meetings are held in Columbus. Contact: Molly Barber
@ ebkids@earthlink.net Phone:
(740)362-0172
Pennsylvania
Metro Philadelphia EB
Support Group We encourage our neighbors in the South Jersey area to
join us! Contact: Kim Luty @ info@ebphilly.org Telephone:
856-816-5780 Website: http://www.ebphilly.org/
Pennsylvania
EB Support Group of
Hershey Pennsylvania Penn State Milton S. Hershey Medical
Center Mohler Senior Center 660 Cherry Drive Hershey, PA
17033 Contact: (717) 442-0277
Texas
Texas EB Support Group
Contact: Draha Brejchova (281) 980-4746
Utah
Contact: Christie
Norton Phone: 801-229-2835
If you live in
Maine or New Hampshire, please contact Sue Chapman at (207) 767-4581 or schapman2@maine.rr.com
Please contact
me to give me more up-to date information on the above support groups
or to give me information about new ones. THANKS!
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