DebRA Australia
Contact
Sue Holley P O Box 226 Pittsworth Q 4356
Tel +61 (07) 46 937
003
email secretary@debra.org.au
website
www.debra.org.au
DEBRA Victoria
contact:
Deb Holmes
P.O. Box 186 Burwood VIC 3125
Tel: 03 9889
9780
Fax: 03 9889 1022
DEBRA NSW Contact:
Alison Schossow (Secretary)
Telephone 02 63 794 294
Email alison.debra@bigpond.com.au
DEBRA South Australia
Contact:
Debra A (SA) Inc PO Box 243 Kingston South Australia 5275
Australia
Tel: +61 (08) 87672871
Fax: +61 (08) 87673036
Mobile:
+61 0427672871
Email: benathan@seol.net.au
DEBRA Western
Australia
Web: http://members.iinet.net.au/~debra/
-->>
Austria
DEBRA Austria
Rechte Weinzweille 29/15A 1040 Wein
Contact Dr R Riedl +43 1 586
2306
Email: ieb@magnet.at
Web
site: http://www.members.magnet.at/users/ieb/
Web site: http://www.debra-austria.org/
-->> Belgium
DEBRA Belgium
contact: Ingrid Jageneau
Tel: +32 012/23 72 46
Fax: +32 012/39
38 71
email: info@debra-belgium.org
Web
site: http://go.to/debra.belgium,
http://www.debra-belgium.org/
and http://www.geocities.com/HotSprings/Villa/4157/debra/index2.htm
-->>
Brazil
Associagco Mineira
dos Parentes, Amigos e Portadores de Epidermslise Bolhosa
http://paginas.terra.com.br/saude/ampapeb
Belo Horizonte, Minas Gerais - Brasil
-->>
Bulgaria
AEBE Dept. of
Dermatology & Venerology, Pleven Medical Institute,
Pleven.
Contact: Dr. M. Trashlieva-Koitcheva +359 64 2 21 2
+359 64 2 91 53
Email: derma@mbox.digysys.bg
National Centre of
Clincal Toxicology
1606 Sofia 21, Totlebene blvd.
tel/fax + 359 2
51 53 409
e-mail: poison_centre@mail.orbitel.bg
Head: Prof. Houbenova
Our web site will be ready soon.
We have
huge experience in management of EB in children and elderly.
-->> Canada
DEBRA Canada
Postal Office Fruitland, Box No. 11111
Stoney Creek, Ontario
L8E 5P9.
Toll Free Phone Number 1-800-313-3012
Email: debra@debracanada.org
Web
Site: http://www.debracanada.org
French EB association
for Quebec province (Canada) http://www.aqeeb.qc.tc
Carrefour des
Papillons - Quebec
contact: Annie
Philibert
contactemail: epidermolyse@hotmail.com
website: http://kaeloup.iquebec.com
French information & support group for the French community from
all around the world...
Informations et groupe de soutien en frangais
pour les gens parlent frangais de partout au monde...
-->>
Chile
DEBRA Chile
Contact: Dr. Francis Palisson at fpalisson@hotmail.com
-->> Costa Rica
DEBRA Costa Rica
contact:
Fundacisn Marvin Barquero Chavarrma PO Box 69, San Josi 2120,
Costa Rica
Tel: +506 244
1414
Fax: +506 244 1313
Email: cashero@racsa.co.cr
-->> Croatia
41000 Zagreb,
Zelengao 41 E
Contact: Mrs. Vlasta Zmakek +385 1
417080 +385 1 442273
e-mail vlasta@debra-croatia.com
Web Site: http://www.debra-croatia.com
-->> Denmark
Centre of Rare
Diseases & Disorders
Bredgde 25, Skt Annae Passage, opg F, DK 1260
Copenhagen K
Contact: Lillian Friis Hansen +33 91
4020 +33 91 40 19
contact: Jan Madsen Email mcstampe@get2net.dk
Jesper
Bonning Email jb-online@get2net.dk
Web Sites:
http://www.debra-danmark.dk/
and http://www.sos.se/smkh/9712019.htm
-->> Finland
DEBRA Finland
Contact: Mikko Blomqvist,
c/o Finnish Central Organisation for
Skin Patients,
The Resource Centre for Rare Skin Diseases
address:
Karjalankatu 2 B, 3rd floor,
FIN-00520 Helsinki, Finland
tel: +358
9 756 2010
email: harvinaiset.ihosairaudet@iholiitto.fi
web: http://www.iholiitto.fi
-->> France
EBAE c/o Mutuelle du
Midi
16 La Canebihre BP 31866
13221 Marseille cedex 01
France
Email: info@ebae.org
Web:
www.ebae.org
president : Mrs Valirie
Davin
-->> Germany
IEBe. V DEBRA
Deutschland
Schnoorstr. 59-63, 01069 Dresden
Schwarzer Weg 9 58739
Wickede Ruhr
Tel: +49 2377 6217
Email: mueller-grosse@t-online.de
Contact:
Sabine Dupre Tel/Fax +49 351 472 7104
web site: http://www.ieb-debra.de/
-->> Hong Kong
DEBRA Hong Kong
Contact:
Ted & Phoebe Leung Rm 504, Fu Yat House, Tai Wo Hau
Est. Tsuen Wan,
Email: kawing@netvigator.com
-->>
Hungary
DEBRA Hungary
contact:
Marta Csikss MD
Semmelweiss University of Medicine, Dept of
Dermatology & Venereology,
Budapest, Maria u. 41
H-1085
Tel: +36 1 266 0465
Fax: +36 1 210 44
-->> India
Contact: CV Ramana
Varma EB Care India
D.No 8-1-52/7 Teachers'Colony,
Mahabubnagar
509002, Andhra Pradesh
Tel +91 08542 455054
e-mail ebcareind@yahoo.com
-->> Ireland
DEBRA Ireland,
contact: Margaret Webb
10, Burgh Quay, Dublin
2,
Tel: +353 1 677
6855
Fax: +353 1 677
6875
Email: info@debraireland.org
Wesite
www.debraireland.org
-->> Israel
DEBRA Israel: Moshav
Havatzelet Hasharon, Nr Natanya
Contact: Shosi Chernicovski
-->> Italy
DEBRA Italy
Via
Arno,96
00198 Rome
www.debraitaliaonlus.org
info@debraitaliaonlus.org
-->> Japan
ASEBI-KAI:
3-18-9-204, Sengoku, Bunkyo-ku, Tokyo 112
Contact: Ms. Emiko
Sato +81 339437008 +81339446460
-->> Mexico
Fundacisn DEBRA
Mixico, A.C.
Email: jsalas@ccr.dsi.uanl.mx
Web
Site: http://www.geocities.com/HotSprings/Villa/1785/ead.htm
-->> Netherlands
Mrs. Gerda Valk -
Schutte (office manager)
Holtwiklanden 168, 7542 JS Enschede The
Netherlands
Tel: 053 - 4 76 91
83
Fax: 053 - 4 78 34
92
Email: debra.nederland@a1.nl
Web:
www.debra.nl
Web: http://www.fietsenvooreb.nl/DaviWB/Pagina1.html
-->>
New Zealand
DEBRA New Zealand
PO Box 7316, Wellington South, New Zealand
Contact: Anna Kemble
Welch (Director)
Email: trustees@debra.org.nz
Phone:
+64 4 389 7316
Fax: ++64 6 879 7277
Web site: http://www.debra.org.nz/index.htm
-->> Norway
Jan Kris. Aaseth
Sxndre Saetre vei 12 3475 Saetre Norway
Tel: +47 0047 3279
4387
Email: Aaseth.Gombos@c2i.net
Web:
www.DEBRA.no
-->> Poland
Stowarzyszenie DEBRA POLSKA Kruchy Dotyk
Ul. M. C.
Sklodowskiej 127/2/29, 41-949 Piekary Slaskie,
tel./fax (+4832) 381-53-17, tel. kom. (+48) 504-262-871
website: www.debra-kd.pl
e-mail: debrapolska@debra-kd.pl
-->> Portugal
NEB: Hospital
Pediatrico Coimbra, 3000 Coimbra
Contact: Dr. Antonio Jose Coelho
Capelo
Tel: +351 39480376 +351 39484464
-->> Romania
DEBRA Romania
contact:
Prof. Buzinschi
Spital de Copii, Str. Nicopole Nr 45,
2200 Brasov, Romania.
Tel: +40
(0)68 415130 ext. 159
Fax: +40
(0)68 418988.
-->> South Africa
Contact: Mrs
Angie Roberts 21a Park Road, Rondebosch 7708, South Africa
Tel +
216892140
e-mail camtone@mweb.co.za
-->> Sweden
Dr. Sven
Wittboldt SebF/DEBRA Sweden, Tvillinggatan IA, 431 43
Molndal
Tel: +46 31 279852
web site:
http://w1.303.telia.com/~u30307742/debra/
web
site: http://www.debra-sweden.org/
-->> Spain
Debra Spain
contact: Carolina Bech Dennis
C/ Real. Conjunto Puertogolf.
Apartamento 36. 29660 Nueva Andalucma. Malaga.
Tel/Fax 952
816434
Email: aebe@aebe-debra.org
Web:
www.aebe-debra.org
-->> Switzerland
DEBRA Switzerland
contact:
Tanja Pauli. DEBRA CH, Birkenweg 102, 3123 Belp.
Switzerland
Tel: ++41 31 879
14 88
Email: info@debra-ch.org
Web:
www.debra-ch.org
-->> Venezuela
AVDEB: Urb. Lomas de
Prados del Este
Av. Principal Esq., c/calle Las Vertientes,Res. El
Prado, Apto 5-B, Caracus
-->> United Kingdom
DEBRA UK:
13
Wellington Business Park, Dukes Ride, Crowthorne, Berkshire
RG4S6LS
Contact: John Dart
Tel: +44 1344
771961 +44 1344 762661
email: debra.uk@btinternet.com
web
site: http://www.debra.org.uk
-->> USA
DEBRA of America inc,
5 W. 36th St. Suite 404 New York, NY
10018
Tel: +1: (212)868-1573
Fax: +1: (212)868-9296
Email:
staff@debra.org
Web: www.debra.org
DebrA Nurse: Madeline
Weiner
Email: debra.nurse@mindspring.com
Phone
for nurse: +44 1(866)332-7276
Also: Do not
miss these two websites:
DEBRA International http://www.debra-international.org
DEBRA Europe: http://www.debra.org.uk/europe/europe1.htm