EB
INFO WORLD A Tribute to EB Friend and Spokesperson:
Steve Young is more than just a superb athlete
(aside being a hunk of a man-personal opinion, I know, but I am sure it
is shared, LOL). He is an excellent role model for kids, because he
truly cares about them.
In 1998 he was
named the Walter Camp Football Foundation's 1998 "Distinguished American of the Year."
Among other things, the article says that Steve is "an individual
who has successfully paralleled his outstanding professional football
career with an extraordinary effort to help create better lives for
oung people in need of help".
But the reason
for this page is to highlight is extraordinary support of the EBMRF (Epidermolysis Bullosa Medical Research
Foundation) to find a cure for Epidermolysis Bullosa.
Aside Princess Diana, who helped our cause by supporting DEBRA UK, heis the only celebrity spokesperson who does not have a direct
reason, meaning a family member or friend with this devastating condition ofthe skin.
Steve
first learned of EB when he agreed to narrate a musical fund raiser
for the EBMRF in Utah. He was so touched by the EB children, tha
the has stayed. He has narrated a second fund raiser in San
Francisco, linked them with the 49er Pledge Program which
brings donations to the EBMRF each year, and narrated their video.
Picture:
Steve Young with with 2 EB patients
He also
serves on the EBMRF Honorary Advisory Board (which also includes Karl
Malone of the Utah Jazz). He has given donations to be used for EB kids to
have fun and sponsored parties in Southern California, Northern
California and Oregon for EB support groups. He continues to donate his
own money for EB research each year.
Needless to say,
we are very grateful to Steve Young for his great support. His "Forever Young Foundation",
lists EB as one of his favorite charities. You can click here to see the video Steve narrated to promote fund
raising and awareness for the EBMRF-you will need RealPlayer to view it,
you can download it here for free. The transcript of this video is also available on this website, just follow this link.
EB is not the only
organization Steve supports, as a matter of fact, his contributions have been vast.
Picture: Steve Young chats with EB patients, Kelly
Drewrey of Los Gatos, CA, and Henry Riojas of Fremont, CA.
He founded and
chairs the Forever Young Foundation (FYF)
which is actively involved in children's charities in the San
Francisco Bay Area and in Utah. Recently, FYF has focused on a project in
two Children's Hospitals. Both The Lucile Packard Children's Hospitalat Stanford University (which just happens to be where
the only west coast EB clinic in the country is located) and Primary
Children's Hospital in Salt Lake City are the recipients of new, state of the
art, interactive recreational-therapy rooms called Forever Young Zones.
These rooms are created with the intent to provide tools for exercising
the imagination of children who find themselves away from home, facing
the emotional and physical challenges that serious illness brings.
Additionally, he
founded the Sport, Education and Values Foundation which is an official
licensee of the United State's Olympic Committee dedicated to developing
educational and value-based programs for America's youth. He is currently the broadcast host as well the
former International Spokesperson for the Children's Miracle Network which has raised over one billion dollars
world-wide to benefit children's hospitals. He is a board member of the American Indian Services. He was active in Salt Lake City's successful bid
for the 2002 Winter Olympics and continues to participate with the
plans for the event. Young frequently donates his time to youth groups
across the country as a motivational speaker.
Steve's
Biography and Career Highlights
JON STEVEN YOUNG was born in Salt Lake City,
Utah on October 11, 1961. Steve was the firstborn of Sherry and
Le Grand (Grit) Young, and was followed by Mike, Melissa, Tom, and Jim. The family
moved to Greenwich, Connecticut when Steve was 8 years old. Steve showed at an early age that he was unusually
gifted both athletically and mentally. In his senior year at Greenwich
High School, he was captain of the football, basketball and baseball
teams, while earning a 4.0 grade point average, including A's in
advanced-placement calculus, and was a National Merit Scholar. In addition, during
Steve's three years of high school, he arose at 5:00 a.m. each morning to
attend an LDS Church religious class before school. Although Steve was an option quarterback at
Greenwich High, he accepted an athletic scholarship to Brigham Young
University, (founded by his great, great, great, great grandfather) a school
known for its sophisticated West Coast Offense-style passing game.
Though he started as the 8th string quarterback, he eventually won the
starting job after the departure of former NFL quarterback Jim MacMahon.
Steve went on to set NCAA passing records, was a consensus All American,
an Academic All American, and was runner-up in the Heisman voting in 1983,his senior year. He was projected to be the number one pick in the 1984NFL draft. Steve opted, instead, to go with the new USFL (United
States Football League) and signed to play with the L.A. Express. L.A.
was closer to home (Provo, Utah), and he thought he would have the
opportunity to start at the quarterback position right away-something that
probably wouldn't happen in the NFL. In 1985, after the USFL folded, Steve
signed on with the Tampa Bay Buccaneers, the team that held his NFL draft
rights. He played for the Buccaneers for two seasons, starting 19 games, andin 1987 was acquired by the San Francisco 49ers. Steve sat behind then49er quarterback, Joe Montana, for four years. In the 1991 season
after Montana was forced out by injuries, Steve lead the NFL in passing
efficiency with a 101.8 quarterback rating his first year as the starter. He
has garnered this honor in 6 times, and holds the all time highest NFL
quarterback rating of 112.8 for the 1994 "Superbowl" season. Although it was difficult sitting on the bench,
Steve is the first to admit that his years of backing up Joe Montana
were an excellent tutorage for becoming a Pro Bowl quarterback. During
that time, in addition to learning the intricacies of quarterbacking
from a master, he was also learning the intricacies of the law at
Brigham Young University's School of Law, receiving his law degree in 1994. Steve has led the San Francisco 49ers to winning
seasons in each of the 7 seasons he's been the starting quarterback,
having won at least 10 games or more each season. Although slowed by
injuries during the 1996 season, which caused him to miss all or part of 8
games, Steve still won the NFL passing title with a quarterback rating of 97.2.In 1997, he won the passing title again with a 104.2 rating. 1998
was a big season for Steve where he was said to be playing at the top
of his game, and at 37 years old. He set a new record for consecutive
games of over 300 passing yards at six games, and a total of over 4,000
yards for the season. He broke his previous 49er record, throwing 36
touchdowns. In 1993, Steve organized the Forever Young Foundation, a
charitable foundation that has raised large sums of money to aid youth
organizations and other charities in the San Francisco area, and in Utah and
Arizona. He plays a direct role in the foundation's administrative,
fundraising, and community activities.
HONORS AND AWARDS:
Steve has been selected to the pro bowl 7 consecutive times since
becoming a starter and holds the pro bowl record for number of TD's thrown (4).He has won two NFL Most Valuable Player Awards in 1992 and 1994. In1992 he was named "Bay Area Sports Hall of Fame Professional
Athlete-of-the-Year. He was named Sports Illustrated Player of the Year in 1992 and 1994;Sporting News Player of the Year in 1992 and 1994; and NFL Player
of the year in 1992 and 1994. He has twice been awarded the Len
Eshmont Award by his teammates, an award given to the 49er who was the
most inspirational player during the season (1992, 1994). In 1994, he
lead his team to the championship in the Super bowl, throwing a record 6touchdown passes.
HOLLYWOOD STEVE:
Steve has appeared on "Late Night With David Letterman"
several times, and on the "Tonight Show" with Jay Leno. He was
also a contestant on "Wheel of Fortune", and has appeared in
the television shows "Beverly Hills 90210", "Wings"
and "Lois and Clark". In 1998 Steve had a role on "Dharma
and Gregg" and played himself. Steve is single, and splits his
time in the off season between homes in Provo, Utah, Park City, Utah,
and Palo Alto, California.
My child has
a skin problem called Epidermolysis Bullosa. This is a long fancy name for a condition of the
skin where a certain protein is missing from the top layer of the skin
called the epidermis. Because the skin is missing this protein,
blisters develop easily. This can occur after a slight bump of the skin,
or can occur on the bottom of the feet from walking too much. Many of
these blisters are painful, but most people with EB get used to them
over time. My child will often wear bandages to protect the skin and
allow healing underneath. This condition is not contagious. You cannot
catch anything. Unfortunately, there is no cure for EB right now, but many doctors are working to find help for EB.
If you wish to donate money or to find out more about EB, we would
appreciate your contacting the following national organizations which are
looking for a cure. Thank You for your concern.
DebRA
of America, Inc.
5 West 36th Street
Suite 404
New York, NY 10018
Tel: (212) 868-1573 or (866) DEBRA76
EBMRF
11812 San Vicente Blvd. Suite 125
Los Angeles, Calif. 90049
310-979-8078
I don't know
of any disease that children face that causes such long term
suffering. You know, you have children that have things that take their
lives, but, this disease, they suffer emotionally and physically for a long long time before they either die or...well, and
actually in the severe forms that's what happens. Lynn Anderson (President of EBMRF)
Playing: What a Wonderful World
by Luis Armstrong Some
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March 18, 2006